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The eQoL-HS is the electronic version of the Quality of Life with Hidradenitis Suppurativa (QoL-HS). It is a patient-reported outcome measure that has been thoughtfully developed and validated by Otten et al. in 2023 to assess the impact of Hidradenitis Suppurativa (HS), also known as acne inversa, on the quality of life experienced by patients. This comprehensive tool aims to incorporate the valuable perspective of patients into treatment decisions and gain a deeper understanding of the patients’ impairments. The QoL-HS is designed to be applicable in both clinical practice and clinical trials, ensuring its practicality and relevance in various settings. By utilizing this patient-reported outcome measure, healthcare professionals can gain valuable insights into the lived experiences and impairments faced by individuals with HS, enhancing the provision of personalized care and advancing research in the field.

Validation of questionnaire

paper version: yes digital version: no

The QoL-HS is a patient-reported outcome measure that allows patients to easily complete the questionnaire at home or in a clinical setting. It consists of 23 questions designed to assess the impact of acne inversa on quality of life over the past week. Patients provide responses using a 5-point Likert scale, ranging from "not at all" to "very much" (scored from 0 to 4). To calculate the QoL-HS score, the average of all items is computed, with higher scores indicating greater impairment due to HS.

Assessing quality of life is crucial in evaluating acne inversa due to its chronic and impactful nature. It allows for patient-centered care by understanding the unique experiences and limitations faced by individuals with HS. Measuring quality of life guides treatment decisions, considering the diverse severity and impact of HS on physical, psychological, and social aspects. It serves as an important outcome measure in research, assessing treatment effectiveness beyond physical manifestations. Furthermore, quality of life assessment raises awareness about HS and advocates for improved care and support. By incorporating quality of life, healthcare professionals address the multidimensional impact of HS, personalize care, inform treatment decisions, advance research, and promote patient well-being.

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The following versions of the eQoL-HS are available

Why should quality of life be assessed in patients with hidradenitis suppurativa?

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